The NHS Staff Are Heroes, So Why Do We Let The Government Treat Them So Badly?

Two weeks ago I had a mastectomy. I went into St Thomas Hospital where surgeons removed my (currently) healthy (and frankly beautiful) breasts and reconstructed new ones using tissue from my stomach in what is known as diep flap reconstruction.

The reason I chose to do this is I have a defective brca1 gene. This gene is usually a tumour suppressor, but it’s faulty status in my body gives me an 80% chance of developing breast cancer.

Since I told people about my decision to proceed with the operation, thus reducing my cancer chances I’ve had a lot of people tell me I’ve made a brave or heroic decision. Of course, that is not true, I was in the fortunate position to be able to take control of my own health and future. There is a hero in my story of course, in fact there are several: the NHS and their staff.

How could I have taken a decision like this without the NHS? From the moment I saw a genetic counsellor at Guy’s Hospital who talked me through the decision to take the diagnostic test to the nurses I saw at the Wound Clinic today I have been treated as an individual with individual needs and have been dealt with by highly trained individuals too numerous to mention, but that include surgeons from two highly trained teams (breast and plastics), anaesthetists, researchers, specialist nurses, physios and other great professionals like porters and health care assistants as well as volunteers supplying services such as the patient cinema at St Thomas’ and helping in the waiting room at clinics.

In all of this, despite the nature of the decision I made and the operation meaning I spent a lot of time undressed I never felt I was losing my dignity. I was helped to shower, comforted as I vomited, helped into bed and had my complicated wounds checked every single hour. The empathy of the nursing and other staff left me feeling good about myself.

I also never had to make any decision in which cost had any bearing at all. Money was simply never mentioned at any stage. Compare this to the situation I could have faced were I an American citizen where my decisions would be governed by the level of insurance I had. Where I may be tied to my job because of the insurance package it gave were the procedure to go wrong at any point and revisions needed. Where I might find parts of my treatment were covered and others not and where the threat of reduction in Obama Care might have forced me to make decisions early.

Now ironically my hospital room overlooked the Houses of Parliament and I happened to be recovering when the Labour Party amendment to give public sector workers a modest pay increase was voted down by the tories to cheers and cackles. Austerity has left public sector staff getting progressively poorer year on year. At the same time the tories have continued to cut tax for top earners.

The number of billionaires in the country has actually risen, this is in a context where the nursing bursary (a recognition of the work students nurses provide on wards up and down the country and the hours they study making it difficult for them to support themselves) has been scrapped. Rather than scrapping it there is a credible argument student nurses should be paid the minimum (sorry, living) wage for the hours they spend working for the NHS. Indeed I was cared for by several students nurses during my stay in hospital. Looking after sick people is no easy task and they all did brilliantly. It’s an absurd thought that they are reliant on loans and overdrafts to allow them to carry out this work and that after a 12 hours shift in the hospital some will have been off to other jobs just to pay their rent. The nursing courses are tough, and that is right as it is hard work, physically, emotionally and academically. Why on earth would we make it hard to survive financially too?

It’s not just student nurses hit by austerity. 17 nurses a day apply for payday loans and there has been rise in nurses attending food banks. A 40,000 shortage in nurses is, maybe unsurprisingly, predicted.

Then there is the treatment of other hospital staff. For example last week porters, security staff and domestics at Barts Health NHS Trust who are actually employed by Serco (but paid for by taxpayers of course) decided on strike action. They are asking for a 30p per hour pay increase. Serco made profits of £82 million last year.

This country is the 6th richest on earth. Why are we happy to treat our health care workers with such disdain? I owe the NHS staff a huge debt of gratitude, as do many others. I am ashamed that this country is not prepared to reward them with decent pay and conditions and I fear in the future many people, in my position will simply not be able to enjoy the excellent treatment I did.

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The Mastectomy Diary Part 2: 6 weeks on

So I promised pictures, and here they are.  A few days before and today, 6 weeks on.

Picture below taken by fabulous Kirsty at Photography by Kirsty (http://www.photographybykirsty.co.uk/)

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I would never have put up pictures like this in public a few months ago, but having been undressed for so many people it does not feel like such a big deal now.  Also having put my body through so much I have a different relationship with it now and feel like I want to honour it.

To some extent today is the day my life returns to normal. I can start wearing deodorant at last and when I can bin the sports bras.  Today I headed to Boux Avenue and got measured and bought some proper underwear.  I was pleased to hear I was the same size – although  not the same shape as before.  This news was met with disbelief by my friend Sam, who insisted ‘they are definitely smaller.’ Still I was happy with what I brough.  When the lady suggested a bra with see-through lace, which clealy showed my scars I thought, why not? and got it.  The scars are part of my journey and I’m not ashamed of them.

I said last time, I’ve had no regrets and that still stands.  The hardest thing has been the tiredness, which has now been attributed to low iron levels and for which I now have tablets.  I timed the operation with the intention of carrying out big plans next year, including starting an MSC in Counselling in September so I really need to be at full fitness for that.  I’ve also been diagnosed with high blood pressure so I am seriously going to have to make some life style choices – probably concerning diet.

I don’t think this experience has changed me at all, I was obsessed with doing as much in life as I could before, especially since losing my mum.  I know some people – possibly including my husband – think I should slow down at times, but I just can’t.  Things are always new things coming along that inspire me to get involved.

At some point I need to confront the fact my defective brca gene gives me a 50% chance of ovarian cancer, the same disease that killed my mum.  I’m waiting on a hysterectomy because unlike a mastectomy, it has implications for other parts of your health including hormones and bones.  I think I’ll revisit this in a decades time and hope I’ve played the odds correctly.

In the mean time thank you so much to all the family and friends who have supported me through this and to everyone who has sent me kind messages.  It really has helped.

Now to get on with the next part of my life.